Below are links to healthcare organisations that will provide useful resources and further information in babies and children’s health.
External Useful Links and Resources
Organisation
Link
Description
Congenital Diaphragmatic Hernia Support Charity
Information for children born with congenital diaphragmatic hernia (hole in the diaphragm) and their families including information on current treatment options.
Tracheo-Oesophageal Fistula
Information for families of children born with oesophageal atresia (incomplete gullet) including support groups.
British Association of Paediatric Surgeons
The national association of paediatric surgeons in the UK. The patient pages contain information on major paediatric surgery centres in the UK, and also have information on common surgical procedures and how to support your child undergoing surgery.
Necrotising Enterocolitis
Information and support for families of children affected by necrotizing enterocolitis, a serious bowel condition affecting the gut of premature infants.
After Trauma
Supporting children affected by trauma and violence especially as they move to adult services.
Redthread
Supporting children affected by trauma and violence especially as they transition to adult services.
ASSIST Trauma Care
Support for young people after traumatic injury and accidents, with particular focus on recovery.
Shine Charity
Information and support for young people born with spinabifida and their families, in particular those with bowel and bladder conditions that may require surgery.
Crohn's & Colitis UK
Support for young people affected with inflammatory bowel diseases and their families including information about diagnosis and treatment.
Association of Paediatric Anaesthetists
Information on all aspects of children’s anaesthesia (going to sleep) and pain relief for children undergoing surgery.
Children’s Cancer and Leukaemia Group
Information for young people and families on all aspects of childhood cancer, including those with cancers treated with surgery.