Children's Health

Below are links to healthcare organisations that will provide useful resources and further information in babies and children's health.

​Useful links and resources: 

Organisation

 Link

Description

Congenital Diaphragmatic Hernia Support Charity
www.cdhuk.org.uk Information for children born with congenital diaphragmatic hernia (hole in the diaphragm) and their families including information on current treatment options.
 www.tofs.org.uk Information for families of children born with oesophageal atresia (incomplete gullet) including support groups.
   www.baps.org.uk/patients/ The national association of paediatric surgeons in the UK. The patient pages contain information on major paediatric surgery centres in the UK, and also has information on common surgical procedures and how to support your child undergoing surgery.
   www.necuk.org.uk/what-is-nec Information and support for families of children affected by necrotizing enterocolitis, a serious bowel condition affecting the gut of premature infants.
  www.aftertrauma.org/introduction/recovery-information-introduction Support for young people and families after traumatic injuries and accidents including conditions that may require surgery
   www.redthread.org.uk/about-us/#our-approach Supporting children affected by trauma and violence especially as they transition to adult services.
assisttraumacare.org.uk/therapeutic-models/ Support for young people after traumatic injury and accidents, in particular focused on recovery.
www.shinecharity.org.uk/bladder-and-bowel-care/bladder-and-bowel-care Information and support for young people born with spinabifida and their families, in particular those with bowel and bladder conditions that may require surgery.
www.crohnsandcolitis.org.uk/support/support-for-families/guides Support for young people affected with inflammatory bowel diseases and their families including information about diagnosis and treatment.

Association of Paediatric Anaesthetists

www.apagbi.org.uk Information on all aspects of children’s anaesthesia (going to sleep) and pain relief for children undergoing surgery.
www.cclg.org.uk Information for young people and families on all aspects of childhood cancer, including those with cancers treated with surgery.

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